Own Your Health Data

2023-03-30T14:34:37+00:00March 30, 2023|Blog, Health Management, Using My Health Story|

Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless appointments required; now, we also have to be considerate of healthcare systems under pressure. Guess who gets the short end of the stick? We pay with our lives. Perhaps healthcare systems were destined to burst their stitches because healthCARE was never built to care for people; it was made to keep people relying on it. That's not care. Can taking more ownership of our health make a difference?

Jaspen, Your Ally in Chronic Pain

2023-02-02T12:45:14+00:00February 2, 2023|Affiliate, Blog, Health Management|

As My Health Story (MHS) knows, one of the biggest challenges for people living with chronic pain is receiving validation. Finding a diagnosis and, once that occurs, being taken seriously and provided adequate support. MHS is happy to introduce an additional partner within the chronic disease world, Jaspen. Jaspen believe that data can attract the right medical team and access the appropriate care. And data communicated from the hands of its owner can empower people to feel in [...]

MHS New Feature: Print My Health Story

2022-09-24T12:08:47+00:00September 24, 2022|Blog, Health Management, Using My Health Story|

(IMAGE: Judy Darling prints her health story via the website) An exciting new feature is helping MHS users communicate their unique health situations more easily during appointments. My Health Story (MHS) has always prioritised the safe sharing of user health stories. The current MHS Access Link function effectively tracks information for users who like to monitor whose checking in to their health story/stories, and when and how often. Over the past few months, some user feedback sent to [...]

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

2021-12-06T20:29:32+00:00December 6, 2021|Blog, Media, Using My Health Story|

(Original post by Soula Mantalvanos for pudendalnerve.com.au) It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who were keen to learn about chronic pain. I've now participated in a few of the Murray City Coast Country (MCCC) GP Training sessions with the fabulous Dr Paul Grinzi (boy, does he get it!). It's a positive experience for [...]

Pain Management Network: Communicating & building your healthcare team

2021-08-01T15:21:53+00:00August 1, 2021|Blog, Health Management|

Living with a chronic condition means that you will have a different role with your healthcare providers than you would have if you had a short-term illness. Your role in managing your condition will be a more pro-active one where you will be involved in making decisions about many things that affect you, your healthcare management, your family, and your lifestyle.

Soula’s Pain Management Video Resources

2021-03-27T13:13:22+00:00March 27, 2021|Blog, Health Management|

A video library is forming on pudendalnerve.com.au! Soula's advocacy has transformed into video conversations with some of the people who have made a significant impact in her pain management and/or who have inspired Soula in some way. It's one thing for Soula to present her thoughts about these people but quite another to hear them explain their point of view. Soula presents chats with Theo Mantalvanos on being a 'carer', she reunites with her diagnosing physiotherapist Anne-Florence Plante (now working in Marsais, France) who shares her wealth of knowledge specifically on what pain is and the role of trauma. Deb Thompson – a creative kindred spirit who lives with pain gives her perspective of what it's like living with pain and communicating it. We also learn about the Alexander Technique from Maddy Lock who worked with Soula during one of Soula's toughest pain years, Amy Eicher talks about pain coaching and Soula presents a couple of videos about her daily life. 

Neos Kosmos Chronic Pain: the Treacherous Disease that Steals the Lives of Thousands

2019-10-04T16:42:32+00:00October 4, 2019|Blog, Media|

(Excerpt from Neos Kosmos feature story by MAΡΙΑ ΚΑΜΠΥΛH 25 September 2019) Πρόκειται για μια ψηφιακή πλατφόρμα καταγραφής του ατομικού ιστορικού των πασχόντων από χρόνιο πόνο έτσι ώστε να μην χρειάζεται κάθε φορά που επισκέπτονται τους διάφορους ειδικούς να επαναλαμβάνουν τις ίδιες πληροφορίες ξανά και ξανά κάτι που είναι τρομερά ψυχοφθόρο για τους ίδιους, όπως μας διαβεβαιώνει η Σούλα εξηγώντας μας πώς ξεκίνησε η ιδέα του Pain train. It is a digital recording platform for chronic pain sufferers' personal [...]

The Australian Prevention Partnership Centre

2019-03-08T12:11:58+00:00March 8, 2019|Blog, Health Management|

Chronic pain resources A summary of online and accessible initiatives and resources Purpose of this resource This resource aims to improve awareness among Primary Health Networks (PHNs) of current online and accessible chronic pain initiatives and resources relevant to primary care in Australia. The information in this resource may be used by PHNs: • To inform the implementation of chronic pain initiatives • To distribute among their networks of primary care providers and consumers PainTrain is listed [...]

Pain Train VICDOC: ‘Time-saving tool for managing chronic pain’

2018-02-08T14:55:38+00:00February 8, 2018|Blog, Media|

Current edition of VICDOC available via the AMA Victoria website Time-saving tool for managing chronic pain Written by Kate James ‘While one in five Australians experience chronic pain (and one in three over 65 years), the National Pain Strategy indicates that many health professionals have limited training in pain management. There is a shortage of pain clinics, public waiting lists are on average two years’ long, and it’s often left to GPs to manage complex conditions in short [...]

How Our Founder Used PT at her Recent Appointment

2017-11-25T12:55:49+00:00November 25, 2017|Blog, Health Management|

(By Soula on pudendalnerve.com.au, My Recent Follow up Appointment) I’ve had loads of information to process after my recent appointment with pain specialist, Dr Nick Christelis. To prevent you all from zoning out (and my backside from having a fit), how about I spread my pain management report out a little? If you’re in a kind of ‘I can’t be bothered, I’m over it’ and ‘don’t want to hear any recommendations or my brain will burst’ state then [...]

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